Keeping your data safe

How we protect your privacy and handle your information.

Your name never travels with your sample

We give your sample a Study ID instead. Before laboratory work begins, it is given a secondary ID for additional security.

Nobody outside of the research team can see your DNA results

No one — including you, your relatives, or your doctors — will be able to ask the researchers specific questions about the DNA of anyone involved in this study.

Sharing data to help science

Pseudonymised data may be shared with approved researchers around the world, under strict data-access agreements.

Read the Privacy notice